Sign Up
 
Log In
416 Players Online
03:25:23 MST
Sign Up or Log In With:
Facebook
Google
Twitter
Marapets is mobile friendly
Marapets is mobile friendly
Gone on a hiatus, don’t know when I’ll be back. Bye everyone :)
ItsJake
  1. Hiatus
    26th Aug 2020 01:33
    28 days, 1 hr & 51 mins ago
  2. Missing Poops
    16th Jul 2020 04:32
    2 months, 7 days & 22 hrs ago
  3. My Real Nightmare:// Collecting 538 Spinesteins
    28th Jun 2019 12:27
    1 year, 2 months & 26 days ago
  4. Love Harry Potter? Need YOUR help! :)
    27th Aug 2017 11:18
    3 years & 27 days ago
  5. Jake:// Selfies :)
    29th Jul 2017 15:59
    3 years, 1 month & 26 days ago
  6. Jake:// NOTE TO STAFF
    29th Jul 2017 04:22
    3 years, 1 month & 26 days ago
  7. Jake:// The day I made 12 Dream Pets at once :)
    19th Jul 2017 13:18
    3 years, 2 months & 5 days ago
  8. Jake:// Missing Photos (W-Z)
    9th May 2017 07:04
    3 years, 4 months & 15 days ago
  9. Jake:// Missing Photos (S-V)
    9th May 2017 06:53
    3 years, 4 months & 15 days ago
  10. Jake:// Missing Photos (P-R)
    9th May 2017 06:38
    3 years, 4 months & 15 days ago
My Real Nightmare:// Collecting 538 Spinesteins
1 year, 2 months & 26 days ago
28th Jun 2019 12:27

Hi !

I???ve decided to finally concentrate on a goal I set last year!

I???m trying to collect 538 Spinestein Minipets...

And here???s why! (Long story ahead!)
Skip to the bottom of you don???t want the back story Okay
On the 1st of February 2017 I started getting bad lower back pain (I???d just turned 21) and I tried to get a doctors appointment for months with no avail. I had doctors ring me back for them to tell me to take painkillers, then stronger painkillers and then even stronger painkillers, all the while, never actually SEEING me. They all said ???It sounds like sciatica, should go in a few weeks???. The first time I actually saw a doctor was in October 2017 after sitting in A&E for 4.5 hours in complete agony.
The pain was getting progressively worse over time.
They signed me up for physio and overdosed me on meds Displeased
Physio didn???t help at all, often it made the pain worse.

I continued to complain to my doctors every week and they just weren???t interested at all. By the time it got to February 2018 (A whole year later!) I was no longer sleeping at night from the pain. I was getting 0-3 hours (in 20/30min bursts) every night and still going to work Monday-Friday. The pain was constant. From my lower back, all down my left leg and into my foot. All day, every day, no relief. And always worse at night.
Not only that, I was now bent over forward just above the hip where I physically could not stand up any straighter from the agony.

The doctors finally took some notice in March and in the April I was sent for a MRI. It came back inconclusive.
By the middle/end of June I was beside myself with pain and lack of sleep.
And it was then, when I told my mum I was going to kill myself because I couldn???t continue to live like that anymore because if I could look and live like I was and nobody in the medical profession cared after 16months, I was never going to get anywhere.
She brought me straight down to our GP and got me an immediate appointment by saying what I said and it was only then when I was crying to the doctor that I just want to die that they took any notice.
16 months of progressive pain and trying to get doctors notice.

They sent me to a specialist 4 days later who did another MRI and I got the results a few days later at work... I had a tumour growing off my spinal cord and I needed emergency surgery.

If they???d left me without surgery, I would have 100% ended up paralysed. If they???d slipped during the surgery, paralysed.
I had to make a choice between more pain and definite paralysis or potential paralysis/permanent nerve damage (or death, standard surgery warning). I was in the mind frame of I can???t live with the pain and if I end up paralysed through surgery, at least I???m out of pain.
On the 23rd of July 2018 I had my first ever surgery. They had to remove a bit of bone from one of my vertebrae to get access to the fluid filled sack surrounding my spinal cord. Then they cut that open and removed the tumour.
It took 5.5 hours to do the surgery and then afterwards I had to lay flat for 4 days before I could sit up slightly on the 5th day. Trying to eat and drink flat is hard so I didn???t manage to keep much down. Days 6-9 was filled with physio learning to walk again. It surprised me just how quickly your muscles fade!
And on day 10, I was finally discharged.

The tumour has been sent off for testing in the meantime and I???m happy to say that it came back benign Wide Grin

18 months after all this started my nightmare was finally over. I had no pain at all, I could stand up straight again and I could sleep!
I still have constant tingling in my left leg but it???s only ever noticeable when I actively think about it Smile

My surgeon was the first person to really take any notice and he gave me my life back. I cannot thank him enough. He came and saw me on the ward every day.
Words simply can???t express my gratitude.
At 22 years old and a cripple, he truly saved my life.

Lol so after that LONG story... 538 Spinesteins!

That???s how many days I spent in pain. 538.
Feb 1st 2017 - July 23rd 2018.

Spinestein - the tumour was in my spine and I have the username Stein! So it???s perfect!

I currently have 55/538 Wide Grin

Any donations would be hugely appreciated as I???ve a long way to go! But I???m also paying 30k each! Just let me know if you have any to sell!

Thank you if you???ve read all of that, I definitely went off on one a bit! XD

As great as everyone was in the hospital, I???ve done my stay and hopefully won???t have to do it ever again! Wide Grin

ItsJake
Thank you so much for your kind words! Pleased@Ease
751 year, 2 months & 19 days ago 5th Jul 2019 13:48
 
Ease
Really glad to know that you're doing well now, you've come out to be such a strong person. I wish you the very best in life and with this endeavor too x c:
271 year, 2 months & 19 days ago 5th Jul 2019 11:48
 
ItsJake
@Owlet thank you!! Pleased Love the username btw Okay
741 year, 2 months & 25 days ago 29th Jun 2019 09:47
 
Muse
I can't believe what you had to go through and I am so happy you are okay now! Okay Good luck with your collection!
621 year, 2 months & 25 days ago 29th Jun 2019 09:46
 
ItsJake
@Meggy thank you!! And thank you so much for the Spinestein!! OkayPleasedAdore

I’m a firm believer (even more so now!Wink that you know your own body and if something doesn’t feel right, it probably isn’t! Smile
731 year, 2 months & 25 days ago 29th Jun 2019 04:54
 
Meggy
I'm happy to know you're okay now! That sounds like such a nightmare and proof that you are your own best advocate.
751 year, 2 months & 25 days ago 29th Jun 2019 04:37
 
Cappygirl
Smile
751 year, 2 months & 26 days ago 28th Jun 2019 23:14
 
ItsJake
Thank you for helping me understand some more!! @Cappygirl Wide Grin
And thank you again for sending me a Spinestein Pleased
721 year, 2 months & 26 days ago 28th Jun 2019 23:13
 
Cappygirl
You got it. You have to learn about the person and how they communicate their struggle. How they show they are struggling or getting overwhelmed. And of course when you can talk ppl expect you to "advocate for yourself". Autistic ppl talk less as they get more stressed. Processing in the brain slows so its harder to cope and come up with the words to tell someone you are struggling. Anyway, I can go on forever about it. lol
741 year, 2 months & 26 days ago 28th Jun 2019 23:11
 
ItsJake
@Cappygirl I can totally see why it’s still not understood, it’s so complex! One day though I hope people can understand and help Smile
I can’t imagine how hard it must be... and how hard it is for their loved ones too. They want to help but probably can’t always as, would I be right in saying, what might have helped in a given situation one time might not help the next?
711 year, 2 months & 26 days ago 28th Jun 2019 23:02
 
  1. Hiatus
    26th Aug 2020 01:33
    28 days, 1 hr & 51 mins ago
  2. Missing Poops
    16th Jul 2020 04:32
    2 months, 7 days & 22 hrs ago
  3. My Real Nightmare:// Collecting 538 Spinesteins
    28th Jun 2019 12:27
    1 year, 2 months & 26 days ago
  4. Love Harry Potter? Need YOUR help! :)
    27th Aug 2017 11:18
    3 years & 27 days ago
  5. Jake:// Selfies :)
    29th Jul 2017 15:59
    3 years, 1 month & 26 days ago
  6. Jake:// NOTE TO STAFF
    29th Jul 2017 04:22
    3 years, 1 month & 26 days ago
  7. Jake:// The day I made 12 Dream Pets at once :)
    19th Jul 2017 13:18
    3 years, 2 months & 5 days ago
  8. Jake:// Missing Photos (W-Z)
    9th May 2017 07:04
    3 years, 4 months & 15 days ago
  9. Jake:// Missing Photos (S-V)
    9th May 2017 06:53
    3 years, 4 months & 15 days ago
  10. Jake:// Missing Photos (P-R)
    9th May 2017 06:38
    3 years, 4 months & 15 days ago